Tuesday, June 21, 2011

Many Syndromes BUT One of Me

Today I have decided to share my experiences with others. Unique to me but yet helpful to others, I will begin my journey. I will take you through the life, as I know it, of my daughter Stephanie who has Down Syndrome. Just one of the many labels of  "Syndromes" society has chosen. She wears it like her name and struggles to become an individual. I say this because throughout her life of schools and doctors many have commented "you forgot to include Down Syndrome"...you think!
So this blog has been created to hopefully help others not only to understand but vent, cope, laugh, cry,  find friendship but most of all bring "Stephanie" to life as a person and not a "Syndrome".
If you are a new mom or an expecting mom, maybe even a mom with a special needs child, I hope you will join me.
Walk with me, talk with me and I am sure you will share with me a life that is not quite perfect but full of love.
 In the following days I will share the first year of Stephanie's life in not so rose colored glasses. Can you learn from me, I hope so. Can I learn from YOU, Yes! There are no wrong answers but there are answers that might not fit your needs at this moment.
Welcome to our world!

2 comments:

  1. Dear Syndrome Mom,
    What a great way to share with us your unique perspective and experience. I feel lucky to have met Stephanie, and at first glance you can't help but fall in love with her. She is a beautiful, sweet girl, however as all people do, I'm sure she has her good days and bad. This is a great way to give Stephanie a voice to the world, to help others better understand, the love, understanding, and patience that is needed to raise any child, but especially one as special as Stephanie. I wish you both all the best in this new endeavor.
    Now how do I become a follower?

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  2. Thanks Maria;
    Just click the follow with Google Friend connect button on the right side of my blog.
    I am so glad you found my blog, it shows you are still connected, as you should be while taking those computer courses.lol
    Marias2cents what a great title for your blog.
    That's just what you did, gave me your 2 cents worth. Come on girl, you know more than you are letting on.
    We'll have to blog more as time goes on, and not just about Steph but about Joey! Get the picture...
    Love and hugs

    ReplyDelete